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  • Hey guys👋!! This is Maria swimming! A little background history, Maria is 12 years old, and last month,June 2020, she has been diagnosed with a rare disease called EGID, Eosinophilic gastritis- EG. 
Eosinophil are white blood cells we all have but are increased when we have an allergic reaction or an asthma attack. This is what is happening in her stomach which is produced by food hypersensitivites.
She is now gluten free🍞, eggs free🥚, dairy free🥛, soy free, peanut free🥜, shelfish free🦐, fish free🐟, the nut free🌰.
Maria also has food intolerances to garlic, tomate🍅, potatoes🥔, eggplant🍆, peppers,  chilli pepper🌶, paprika and curry. (The Solanaceae, or nightshade family)
We are here sharing Maria' story to receive and give love, light, optimism and hopefully became an advocate for athletic and children struggling with this disease! Hope for Maria💜. Thank you 

Oi pessoal👋! Esta é a Maria nadando! Um pequeno resumo da história dela, a Maria tem 12 anos e no mês passado, em junho de 2020, ela foi diagnosticada com uma doença rara chamada Gastroenterite Eosinofílica.
Eosinófilos são um tipo de glóbulo branco do sangue que desempenha um papel importante na resposta do organismo a reações alérgicas e asma. Essas células contribuem para a inflamação que ocorre em distúrbios alérgicos. 
E é o que está acontecendo com o estômago e intestino da Maria, por hipersensilbilidade alimentar, ou alergia alimentar. 
Atualmente a Maria tem alergia alimetar a: glúten🍞, ovos🥚, leite🥛, soja, amendoim🥜, frutas secas🌰, peixe🐟 e mariscos🦐.
A Maria também tem intolerância alimentar à alho, tomate🍅, batata🥔, beringela🍆, pimentão, pimenta🌶, jiló, jurubeba, goji, paprika - Família das Solanáceas.
Estamos para dividir com vocês a história da Maria para receber e dar amor aos atletas e crianças sofrendo com esta doença! Esperança para a Maria e para a cura💜! Abraços e obrigada

#egid #hopeformaria #eosinophilicesophagitisawareness #eosinophilicgastroenteritis
#eosinophilicdisease
#eosinophilicdisorders #foodallergies #allergyfree #top8free #allergies #eosinophil #glutenfree #dairyfree #soyfree #grainfree #eggfree #findacure #big8allergenfriendly #allergictofood
  • Hey guys👋!! This is Maria swimming! A little background history, Maria is 12 years old, and last month,June 2020, she has been diagnosed with a rare disease called EGID, Eosinophilic gastritis- EG.
    Eosinophil are white blood cells we all have but are increased when we have an allergic reaction or an asthma attack. This is what is happening in her stomach which is produced by food hypersensitivites.
    She is now gluten free🍞, eggs free🥚, dairy free🥛, soy free, peanut free🥜, shelfish free🦐, fish free🐟, the nut free🌰.
    Maria also has food intolerances to garlic, tomate🍅, potatoes🥔, eggplant🍆, peppers,  chilli pepper🌶, paprika and curry. (The Solanaceae, or nightshade family)
    We are here sharing Maria' story to receive and give love, light, optimism and hopefully became an advocate for athletic and children struggling with this disease! Hope for Maria💜. Thank you

    Oi pessoal👋! Esta é a Maria nadando! Um pequeno resumo da história dela, a Maria tem 12 anos e no mês passado, em junho de 2020, ela foi diagnosticada com uma doença rara chamada Gastroenterite Eosinofílica.
    Eosinófilos são um tipo de glóbulo branco do sangue que desempenha um papel importante na resposta do organismo a reações alérgicas e asma. Essas células contribuem para a inflamação que ocorre em distúrbios alérgicos.
    E é o que está acontecendo com o estômago e intestino da Maria, por hipersensilbilidade alimentar, ou alergia alimentar.
    Atualmente a Maria tem alergia alimetar a: glúten🍞, ovos🥚, leite🥛, soja, amendoim🥜, frutas secas🌰, peixe🐟 e mariscos🦐.
    A Maria também tem intolerância alimentar à alho, tomate🍅, batata🥔, beringela🍆, pimentão, pimenta🌶, jiló, jurubeba, goji, paprika - Família das Solanáceas.
    Estamos para dividir com vocês a história da Maria para receber e dar amor aos atletas e crianças sofrendo com esta doença! Esperança para a Maria e para a cura💜! Abraços e obrigada

    #egid #hopeformaria #eosinophilicesophagitisawareness #eosinophilicgastroenteritis
    #eosinophilicdisease
    #eosinophilicdisorders #foodallergies #allergyfree #top8free #allergies #eosinophil #glutenfree #dairyfree #soyfree #grainfree #eggfree #findacure #big8allergenfriendly #allergictofood

  •  13  1  12 July, 2020
  • Update:

Three weeks post-op today. Recovery is going well. 👊

Starting a new treatment for my asthma/allergies today. I just received two Dupixent shots. I'll be getting one shot every other week for about six months - stopping allergy shots for now.

Unfortunately, my symptoms are really bad again so I'm getting one last round of Prednisone - five day RX.

Dr said I should feel a difference within hours after the shots today and following the third shot most symptoms if not all should be gone. 
Let's hope!! I'm ready for a permanent solution to my eosinophilic condition.

Happy Monday!

#eosinophilicdisease #eosinophilicdisorders #asthma #allergies #momlife #momof3boys #momofboys #boymom #boymomlife
  • Update:

    Three weeks post-op today. Recovery is going well. 👊

    Starting a new treatment for my asthma/allergies today. I just received two Dupixent shots. I'll be getting one shot every other week for about six months - stopping allergy shots for now.

    Unfortunately, my symptoms are really bad again so I'm getting one last round of Prednisone - five day RX.

    Dr said I should feel a difference within hours after the shots today and following the third shot most symptoms if not all should be gone.
    Let's hope!! I'm ready for a permanent solution to my eosinophilic condition.

    Happy Monday!

    #eosinophilicdisease #eosinophilicdisorders #asthma #allergies #momlife #momof3boys #momofboys #boymom #boymomlife

  •  24  5  8 June, 2020
  • Dallas/Ft Worth Texas Families: Join our zoom webinar with guest Dr Michael Russo, Pediatric Gastroenterologist in Dallas. 
When: 5/8, 2:15pm CST. 
Hear him talk about Eosinophilic Disorders: Diagnosis & Treatment options. #eosinophiliceducation #eosinophilicesophagitis #eosinophilicdisorders 
Link in bio:

https://zoom.us/webinar/register/8015888828458/WN_B5jQbMTuQCGvgbX5bV12Xw
  • Dallas/Ft Worth Texas Families: Join our zoom webinar with guest Dr Michael Russo, Pediatric Gastroenterologist in Dallas.
    When: 5/8, 2:15pm CST.
    Hear him talk about Eosinophilic Disorders: Diagnosis & Treatment options. #eosinophiliceducation #eosinophilicesophagitis #eosinophilicdisorders
    Link in bio:

    https://zoom.us/webinar/register/8015888828458/WN_B5jQbMTuQCGvgbX5bV12Xw

  •  4  0  7 May, 2020
  • PIZZA NIGHT 🍕 ... MEATLOVERS PIZZA on SOURDOUGH CRUST. I've been doing a lot of baking with my sourdough starter during this quarantine and it has been a lot of fun! The crust is dairy free and egg free (could be made gluten/wheat free with a gf starter and gf flour) and I used @followyourheart dairy free mozzarella cheese on one side and left the other side of the pizza cheese-less. Adjust your toppings to your taste and preferences! Would have done a veggie pizza but my husband hates veggies on pizza.... we're working on it. 😉 This was DELICIOUS! 🍕🍕🍕 .
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#pizza #🍕 #sourdoughpizza #sourdoughpizzadough #sourdoughpizzacrust #pizzanight #meatlovers #meatloverspizza #homemadepizza #wheatsensitivity #wheatintolerance #glutensensitivity #glutenintolerance #veganpizzacrust #dairyfree #milkfree #eggfree #eggallergy #milkallergy #dairysensitivity #lactoseintolerant #allergyfriendly #allergyfree #eoe #eosinophilicesophagitis #eosinophilicdisorders #allergenfree #allergenfriendly #foodallergies #multiplefoodallergies
  • PIZZA NIGHT 🍕 ... MEATLOVERS PIZZA on SOURDOUGH CRUST. I've been doing a lot of baking with my sourdough starter during this quarantine and it has been a lot of fun! The crust is dairy free and egg free (could be made gluten/wheat free with a gf starter and gf flour) and I used @followyourheart dairy free mozzarella cheese on one side and left the other side of the pizza cheese-less. Adjust your toppings to your taste and preferences! Would have done a veggie pizza but my husband hates veggies on pizza.... we're working on it. 😉 This was DELICIOUS! 🍕🍕🍕 .
    .
    .
    #pizza #🍕 #sourdoughpizza #sourdoughpizzadough #sourdoughpizzacrust #pizzanight #meatlovers #meatloverspizza #homemadepizza #wheatsensitivity #wheatintolerance #glutensensitivity #glutenintolerance #veganpizzacrust #dairyfree #milkfree #eggfree #eggallergy #milkallergy #dairysensitivity #lactoseintolerant #allergyfriendly #allergyfree #eoe #eosinophilicesophagitis #eosinophilicdisorders #allergenfree #allergenfriendly #foodallergies #multiplefoodallergies

  •  145  25  29 April, 2020
  • Some providers are requiring COVID-19 testing before surgery. This includes Scopes for EGIDs. Check with your healthcare provider. Cincinnati Childrens is now requiring this testing before surgery. The testing is NOT an out of pocket expense for patient. 
https://www.cincinnatichildrens.org/patients/coronavirus-information/questions-answers
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#covid19 #surgery #eosinophilicdisorders #eoe #eosinophilicdisease #CCED
  • Some providers are requiring COVID-19 testing before surgery. This includes Scopes for EGIDs. Check with your healthcare provider. Cincinnati Childrens is now requiring this testing before surgery. The testing is NOT an out of pocket expense for patient.
    https://www.cincinnatichildrens.org/patients/coronavirus-information/questions-answers
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    .
    .
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    #covid19 #surgery #eosinophilicdisorders #eoe #eosinophilicdisease #CCED

  •  2  0  22 April, 2020
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WHY SERENITY IS FOR EVERYONE!
First of all, they're an extremely convenient way to carry a healthy, nutrient dense snack with you (they're meant to be consumed at room temperature but you could warm them a little by immersing the pouch in a cup of hot water if you prefer).
For adults? Really? Yes - absolutely! Check out the nutritional value on these products ... their simple ingredients make them perfect for AIPers!
Since they're shelf-stable, you can easily stock up on a product like this for camping, hiking, travel, busy days and even EMERGENCY scenarios like we're facing now, hydro outrages, storms and more.

#organicbabyfood #nutrientdensity #ethicallyraised #eoe #egid #eosinophilicgastroenteritis #eosinophilicdisorders #wean #organic #realfood #simpleingredients #whole30 #aip #paleo #snack #camping #hiking #stockup #coronavirus #pantryitems #healthykids #serenitykids
  • 💛15% OFF from our NEW AFFILIATE PARTNER - SERENITY KIDS! Baby food that's for more than just babies!💛.
    .
    SERENITY KIDS :
    💛NUTRIENT DENSE.
    💛SIMPLE INGREDIENTS.
    💛ETHICALLY SOURCED PASTURED MEATS.
    💛SUSTAINABLE ORGANIC VEGETABLES.
    💛HEALTHY FATS.
    💛AIP COMPLIANT! (only 1 of their 10 flavors is not elimination stage: Chicken - contains stage 1 reintro of peas).
    💛SHELF-STABLE BPA-FREE POUCHES (with a free RECYCLABLE POUCH PROGRAM since most city recycling programs don't accept them).
    .
    💛 SHOP HERE: with the last be Affiliate Link in my bio (https://myserenitykids.com/?rfsn=3718103.8e897f).
    💛COUPON CODE: AIPRECIPES saves 15% off your first order. ☺.
    💛FREE SHIPPING on orders over $35 (7-10 business days for shipping).
    .
    💛LEARN MORE ABOUT SERENITY :
    I encourage you to visit their website and take a look around - learn more about the nutrition behind their products, where they source their ingredients, their environmentally focused mission and how they give back.
    .
    WHY SERENITY IS FOR EVERYONE!
    First of all, they're an extremely convenient way to carry a healthy, nutrient dense snack with you (they're meant to be consumed at room temperature but you could warm them a little by immersing the pouch in a cup of hot water if you prefer).
    For adults? Really? Yes - absolutely! Check out the nutritional value on these products ... their simple ingredients make them perfect for AIPers!
    Since they're shelf-stable, you can easily stock up on a product like this for camping, hiking, travel, busy days and even EMERGENCY scenarios like we're facing now, hydro outrages, storms and more.

    #organicbabyfood #nutrientdensity #ethicallyraised #eoe #egid #eosinophilicgastroenteritis #eosinophilicdisorders #wean #organic #realfood #simpleingredients #whole30 #aip #paleo #snack #camping #hiking #stockup #coronavirus #pantryitems #healthykids #serenitykids

  •  11  1  17 March, 2020
  • Here’s to hoping this works for my eosinophilic esophagitis and gastritis 🤞🏻
So quick update: I’m on a new medication that’s causing WICKED bloating. Ive gained like 6 pounds from the bloating and it’s really messing with my head. It’s for my stomach, not my mental health. I’m going to stop taking it and see if there’s something else cause yeah, it sorta works, but I’m so mentally unstable it’s sending me right to the edge. There’s gotta be something else. 
I performed in a drag show the other night and it went well! I was super anxious, as usual, but I’m happy with how it went. If you follow me on my regular account @aidan.the.runner  you can see the performance. 
My caseworker suggested inpatient treatment over the summer just because I can’t seem to function very well at this point. I got really pissed and left the appointment. She knows I can’t do that. However, she also did say I work best when I’m angry, so maybe her saying that will push me to utilize my rage to advocate more for myself. Idk. 
Also it’s been 5 days since I last self harmed! I’m proud of it but urges are really strong mainly cause of how I feel in my body from the new medication. 
#anorexia #anorexianervosa #edrecovery #anxiety #depression #gastroparesis #eoe #eosinophilicdisorders #recoveryisntlinear #selfharmrecovery
  • Here’s to hoping this works for my eosinophilic esophagitis and gastritis 🤞🏻
    So quick update: I’m on a new medication that’s causing WICKED bloating. Ive gained like 6 pounds from the bloating and it’s really messing with my head. It’s for my stomach, not my mental health. I’m going to stop taking it and see if there’s something else cause yeah, it sorta works, but I’m so mentally unstable it’s sending me right to the edge. There’s gotta be something else.
    I performed in a drag show the other night and it went well! I was super anxious, as usual, but I’m happy with how it went. If you follow me on my regular account @aidan.the.runner you can see the performance.
    My caseworker suggested inpatient treatment over the summer just because I can’t seem to function very well at this point. I got really pissed and left the appointment. She knows I can’t do that. However, she also did say I work best when I’m angry, so maybe her saying that will push me to utilize my rage to advocate more for myself. Idk.
    Also it’s been 5 days since I last self harmed! I’m proud of it but urges are really strong mainly cause of how I feel in my body from the new medication.
    #anorexia #anorexianervosa #edrecovery #anxiety #depression #gastroparesis #eoe #eosinophilicdisorders #recoveryisntlinear #selfharmrecovery

  •  14  0  10 November, 2019
  • Soup. Clear broth. Pretty much the only thing I can eat these days. Without prednisone my #EoE is out of control. Earlier today I tried to eat some well cooked chicken. For protein. I was unable to swallow it, and it became impacted. 
Food impaction is horrifically painful. Your oesophagus clamps down and the food can’t go down, which is rather excruciating. There’s only two ways to relieve the situation, vomit it back up or go to the ER for endoscopic removal. 
Luckily the first option worked, it took done doing though. So now I’m down to clear fluids. Indefinitely. 
This is how people with severe #eosinophilicesophagitis live. The next step is a feeding tube. 
This week is #egids awareness week. 
I have barely eaten solid food in three years.  I can never eat out. I prepare everything I eat. Or I don’t eat. 
Today my mother brought me soup because she’s worried about me. I thanked her profusely but had to explain I can’t eat it, because it had noodles in it. so She made another soup from water, carrots, celery and soup bones. Which I can eat. I’m so appreciative. 
I can’t help it. It’s not a fad diet. It’s a disease. A real one. A painful one. And we need awareness and understanding. 
#eosaware #egids #eoe #ee #eosinophilicdisorders
  • Soup. Clear broth. Pretty much the only thing I can eat these days. Without prednisone my #EoE is out of control. Earlier today I tried to eat some well cooked chicken. For protein. I was unable to swallow it, and it became impacted.
    Food impaction is horrifically painful. Your oesophagus clamps down and the food can’t go down, which is rather excruciating. There’s only two ways to relieve the situation, vomit it back up or go to the ER for endoscopic removal.
    Luckily the first option worked, it took done doing though. So now I’m down to clear fluids. Indefinitely.
    This is how people with severe #eosinophilicesophagitis live. The next step is a feeding tube.
    This week is #egids awareness week.
    I have barely eaten solid food in three years. I can never eat out. I prepare everything I eat. Or I don’t eat.
    Today my mother brought me soup because she’s worried about me. I thanked her profusely but had to explain I can’t eat it, because it had noodles in it. so She made another soup from water, carrots, celery and soup bones. Which I can eat. I’m so appreciative.
    I can’t help it. It’s not a fad diet. It’s a disease. A real one. A painful one. And we need awareness and understanding.
    #eosaware #egids #eoe #ee #eosinophilicdisorders

  •  21  1  9 August, 2019
  • These photos may be a bit graphic to some so don't look if you're that squeamish but, I feel it's necessary to post. Most don't know how severe my eczema truly is because I choose to cover it up when it gets like this. I'm exposing these photos to again implore you to not make judgments on others who tell you they experience certain illnesses that you have deemed not that serious or your experience with wasn't that severe. I spoke with a guy at my job whose eczema was just like mine and was told by folks he was exaggerating. Eczema is never bad enough to have to stay home. Tuh! If your skin was to crack, bleed, weep, and swell EVERYWHERE with any lil movement you wouldn't want to move EITHER. Let this serve as a reminder to be compassionate with those who have experienced things you haven't and don't understand. #eczema #eosinophilicdisorders #chronicillnesswarrior
  • These photos may be a bit graphic to some so don't look if you're that squeamish but, I feel it's necessary to post. Most don't know how severe my eczema truly is because I choose to cover it up when it gets like this. I'm exposing these photos to again implore you to not make judgments on others who tell you they experience certain illnesses that you have deemed not that serious or your experience with wasn't that severe. I spoke with a guy at my job whose eczema was just like mine and was told by folks he was exaggerating. Eczema is never bad enough to have to stay home. Tuh! If your skin was to crack, bleed, weep, and swell EVERYWHERE with any lil movement you wouldn't want to move EITHER. Let this serve as a reminder to be compassionate with those who have experienced things you haven't and don't understand. #eczema #eosinophilicdisorders #chronicillnesswarrior

  •  4  0  25 June, 2019
  • Once upon  a time I'd say there's no worse feeling than not being able to breathe. Maybe I'm just used to it. Maybe I'm so often in a state of not being able to breathe that I don't even recognize what normal breathing feels like anymore. Anyway at this point there's no worse feeling then waking up to your skin inflamed, cracked, bleeding, and coming off(yes that my skin on my lap) just from moving your arm. 🙄over it. #chronicillness #eosinophilicdisorders #eczema #chronicillness #chronicillnesswarrior #chronicallyfaithful
  • Once upon a time I'd say there's no worse feeling than not being able to breathe. Maybe I'm just used to it. Maybe I'm so often in a state of not being able to breathe that I don't even recognize what normal breathing feels like anymore. Anyway at this point there's no worse feeling then waking up to your skin inflamed, cracked, bleeding, and coming off(yes that my skin on my lap) just from moving your arm. 🙄over it. #chronicillness #eosinophilicdisorders #eczema #chronicillness #chronicillnesswarrior #chronicallyfaithful

  •  6  0  25 May, 2019
  • Sometimes the body is weighed down by unrecognized stressors. Becoming attune to those things that no longer serve your whole being, can provide a catalyst for healing or continued illness. 🕊 ⛅Continuing to allow these triggers  to damage the system, is giving the power to outside sources. 🌄Simple acts of self-care, letting go and opening the self to whatever modalities nurture you can bring freedom from what is limiting and damaging. 🌿Spring reminds me that I have a choice in what I see. Is the branch being weighed down and constricted or is the new growth emerging and allowing itself to shine? If you don't like what you see, it's easier to change your perspective about it than to rush in and change what you are seeing. 🌱
#YoQi #YinYoga #EliminationDiet #EosinophilicDisorders #HealTheSelf #Meditation #LetCreativityFlow #WeHaveThePower2Heal
  • Sometimes the body is weighed down by unrecognized stressors. Becoming attune to those things that no longer serve your whole being, can provide a catalyst for healing or continued illness. 🕊 ⛅Continuing to allow these triggers to damage the system, is giving the power to outside sources. 🌄Simple acts of self-care, letting go and opening the self to whatever modalities nurture you can bring freedom from what is limiting and damaging. 🌿Spring reminds me that I have a choice in what I see. Is the branch being weighed down and constricted or is the new growth emerging and allowing itself to shine? If you don't like what you see, it's easier to change your perspective about it than to rush in and change what you are seeing. 🌱
    #YoQi #YinYoga #EliminationDiet #EosinophilicDisorders #HealTheSelf #Meditation #LetCreativityFlow #WeHaveThePower2Heal

  •  4  0  20 April, 2019
  • Today’s major project - my gym!  At my old house I had a great set up. I don’t have as much room here. But there isn’t much I can’t do in this space, and with this gear. In fact, you don’t need half of this, especially for rehab. 
Short of medication, movement is the most important, most effective, and simplest thing I can do to improve my ability and reduce my disability. 
Pain is a constant. Short term? Gym work might make it worse. Medium to long?  Appropriate exercise will improve my quality of life, and the length of my life. 
Many, many choices have been taken from me. But this choice is still mine. 💜. There is almost always something I can do. honestly? When I don’t exercise, it’s mental as much as physical. It hurts. It’s hard. Mostly I just don’t damn well want to...short term thinking. 
But Moving, cleaning, putting down  mats, moving weights, making this space, turned out to be today’s workout. Gamer boy and the Chicklet helped. i cant do my light weights program today, but I’m still proud of my achievements today. 
I’ll start my weights tomorrow. First thing to know about exercising is BE REALISTIC. No need to push too hard on day 1...Shit happened. Day 1 is arbitrary. So I won’t start today. 
And I won’t start at square one, but I will start back gently. My quals have lapsed, but I’m a personal trainer. And a life-long gym junkie. And yet I was run out of my gym due to lack of confidence. (And some effing mean people.) I KNOW  it’s hard. I know you hate it. I know it hurts. 
I know. 
But I’m going to exercise as hard,and for as long, as I can. And if you want to as well, you can too. In a way that’s right for you. Ignore everyone who tells you you can’t. Listen to you. Listen to your body. Listen to your heart. 
So...tomorrow I’m going to start. And I’ll post my routine. 
#chroniclife #ra #mctd #ankylosingspondylitis #spondylosis #sciatica #neuralcompromise #adrenalinsufficiency #notadrenalfatigue #addisons #crohns #eoe #Eosinophilicdisorders #resistancetraining #cardio #complimentarymedicine
  • Today’s major project - my gym! At my old house I had a great set up. I don’t have as much room here. But there isn’t much I can’t do in this space, and with this gear. In fact, you don’t need half of this, especially for rehab.
    Short of medication, movement is the most important, most effective, and simplest thing I can do to improve my ability and reduce my disability.
    Pain is a constant. Short term? Gym work might make it worse. Medium to long? Appropriate exercise will improve my quality of life, and the length of my life.
    Many, many choices have been taken from me. But this choice is still mine. 💜. There is almost always something I can do. honestly? When I don’t exercise, it’s mental as much as physical. It hurts. It’s hard. Mostly I just don’t damn well want to...short term thinking.
    But Moving, cleaning, putting down mats, moving weights, making this space, turned out to be today’s workout. Gamer boy and the Chicklet helped. i cant do my light weights program today, but I’m still proud of my achievements today.
    I’ll start my weights tomorrow. First thing to know about exercising is BE REALISTIC. No need to push too hard on day 1...Shit happened. Day 1 is arbitrary. So I won’t start today.
    And I won’t start at square one, but I will start back gently. My quals have lapsed, but I’m a personal trainer. And a life-long gym junkie. And yet I was run out of my gym due to lack of confidence. (And some effing mean people.) I KNOW it’s hard. I know you hate it. I know it hurts.
    I know.
    But I’m going to exercise as hard,and for as long, as I can. And if you want to as well, you can too. In a way that’s right for you. Ignore everyone who tells you you can’t. Listen to you. Listen to your body. Listen to your heart.
    So...tomorrow I’m going to start. And I’ll post my routine.
    #chroniclife #ra #mctd #ankylosingspondylitis #spondylosis #sciatica #neuralcompromise #adrenalinsufficiency #notadrenalfatigue #addisons #crohns #eoe #Eosinophilicdisorders #resistancetraining #cardio #complimentarymedicine

  •  21  1  4 January, 2019
  • Don't adjust your settings, that's really a cup of purple deliciousness .. Goguma Latte / Purple Sweet Potato Latte #yummyinmytummy
(Yes that's a filter but it's really that color!)
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For this and more AIP compliant purple sweet potato recipes (including brownies, smoothie, and other sweet treats) join our searchable Facebook group (Link in bio) and search purple sweet potato! Easy peasy! 
Branch out and use your imagination .. try substituting these purple sweet potatoes in sweet potato fudge .. or make purple sweet potato fries or purple mashed sweet potatoes .. you'll be a super hero to your #AIPKIDDOS
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NOTE: purple fleshed sweet potatoes look similar to white fleshed sweet potatoes .. can you tell the difference in the last photo? Keep your eyes peeled for this adorable option in your grocery store or Asian markets.
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#aipshowusyourplate
#autoimmunepaleo #AIP #autoimmuneprotocol #Paleo #selfcare  #cuddleupbythefire #kidfriendly #Recipes #Grainfree #GlutenFree #NutFree #nightshadefree #DairyFree #soyfree #holidayplanning #healingdiet  #Hashimotos #ThyroidDisease #Celiac #EosinophilicDisorders #Fibromyalgia #CIRS  #ChronicIllness #ChronicFatigue #koreanfood #Goguma #latte
  • Don't adjust your settings, that's really a cup of purple deliciousness .. Goguma Latte / Purple Sweet Potato Latte #yummyinmytummy
    (Yes that's a filter but it's really that color!)
    .
    For this and more AIP compliant purple sweet potato recipes (including brownies, smoothie, and other sweet treats) join our searchable Facebook group (Link in bio) and search purple sweet potato! Easy peasy!
    Branch out and use your imagination .. try substituting these purple sweet potatoes in sweet potato fudge .. or make purple sweet potato fries or purple mashed sweet potatoes .. you'll be a super hero to your #AIPKIDDOS
    .
    .
    NOTE: purple fleshed sweet potatoes look similar to white fleshed sweet potatoes .. can you tell the difference in the last photo? Keep your eyes peeled for this adorable option in your grocery store or Asian markets.
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    #aipshowusyourplate
    #autoimmunepaleo #AIP #autoimmuneprotocol #Paleo #selfcare #cuddleupbythefire #kidfriendly #Recipes #Grainfree #GlutenFree #NutFree #nightshadefree #DairyFree #soyfree #holidayplanning #healingdiet #Hashimotos #ThyroidDisease #Celiac #EosinophilicDisorders #Fibromyalgia #CIRS #ChronicIllness #ChronicFatigue #koreanfood #Goguma #latte

  •  50  5  18 December, 2018
  • Looking for delicious AIP holiday appetizer ideas? Don't worry you can still enjoy a beautiful charcuterie / holiday appetizer platter with a little  imagination. 
Join our searchable Facebook Group (link in bio) and search for things like:  appetizer, dip, cheese, queso, hummus, holiday platter, charcuterie, crackers, flatbread, breadsticks, etc... There are so many wonderful AIP options ... you won't go hungry ... you just need to plan ahead and use your imagination! ♥
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#autoimmunepaleo #AIP #autoimmuneprotocol #Paleo #Appetizer #holiday #christmas #NewYear #Recipes #Grainfree #GlutenFree #NutFree #nightshadefree #DairyFree #soyfree #holidayplanning #healingdiet #IBD #Hashimotos #ThyroidDisease #Celiac #EosinophilicDisorders #Fibromyalgia #CIRS #arthritis #ChronicIllness #ChronicFatigue
  • Looking for delicious AIP holiday appetizer ideas? Don't worry you can still enjoy a beautiful charcuterie / holiday appetizer platter with a little imagination.
    Join our searchable Facebook Group (link in bio) and search for things like: appetizer, dip, cheese, queso, hummus, holiday platter, charcuterie, crackers, flatbread, breadsticks, etc... There are so many wonderful AIP options ... you won't go hungry ... you just need to plan ahead and use your imagination! ♥
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    #autoimmunepaleo #AIP #autoimmuneprotocol #Paleo #Appetizer #holiday #christmas #NewYear #Recipes #Grainfree #GlutenFree #NutFree #nightshadefree #DairyFree #soyfree #holidayplanning #healingdiet #IBD #Hashimotos #ThyroidDisease #Celiac #EosinophilicDisorders #Fibromyalgia #CIRS #arthritis #ChronicIllness #ChronicFatigue

  •  45  1  18 December, 2018
  • So you know what #eosinophilicesophagitis does? When its severe and you cant find the trigger, its stops you from eating. You can eat a few mouthfuls of 'safe' food, but quite often, you still find something gets stuck in your throat, which is so painful, so you throw it back up.  It hurts. You cant eat. You throw up a lot.  Eating out is no fun. Its expensive vomit. #EoE #eosinophilicdisorders #eosinophilicesophagitis
  • So you know what #eosinophilicesophagitis does? When its severe and you cant find the trigger, its stops you from eating. You can eat a few mouthfuls of 'safe' food, but quite often, you still find something gets stuck in your throat, which is so painful, so you throw it back up. It hurts. You cant eat. You throw up a lot. Eating out is no fun. Its expensive vomit. #EoE #eosinophilicdisorders #eosinophilicesophagitis

  •  8  1  5 December, 2018

Top #eosinophilicdisorders Posts

  • Hey guys👋!! This is Maria swimming! A little background history, Maria is 12 years old, and last month,June 2020, she has been diagnosed with a rare disease called EGID, Eosinophilic gastritis- EG. 
Eosinophil are white blood cells we all have but are increased when we have an allergic reaction or an asthma attack. This is what is happening in her stomach which is produced by food hypersensitivites.
She is now gluten free🍞, eggs free🥚, dairy free🥛, soy free, peanut free🥜, shelfish free🦐, fish free🐟, the nut free🌰.
Maria also has food intolerances to garlic, tomate🍅, potatoes🥔, eggplant🍆, peppers,  chilli pepper🌶, paprika and curry. (The Solanaceae, or nightshade family)
We are here sharing Maria' story to receive and give love, light, optimism and hopefully became an advocate for athletic and children struggling with this disease! Hope for Maria💜. Thank you 

Oi pessoal👋! Esta é a Maria nadando! Um pequeno resumo da história dela, a Maria tem 12 anos e no mês passado, em junho de 2020, ela foi diagnosticada com uma doença rara chamada Gastroenterite Eosinofílica.
Eosinófilos são um tipo de glóbulo branco do sangue que desempenha um papel importante na resposta do organismo a reações alérgicas e asma. Essas células contribuem para a inflamação que ocorre em distúrbios alérgicos. 
E é o que está acontecendo com o estômago e intestino da Maria, por hipersensilbilidade alimentar, ou alergia alimentar. 
Atualmente a Maria tem alergia alimetar a: glúten🍞, ovos🥚, leite🥛, soja, amendoim🥜, frutas secas🌰, peixe🐟 e mariscos🦐.
A Maria também tem intolerância alimentar à alho, tomate🍅, batata🥔, beringela🍆, pimentão, pimenta🌶, jiló, jurubeba, goji, paprika - Família das Solanáceas.
Estamos para dividir com vocês a história da Maria para receber e dar amor aos atletas e crianças sofrendo com esta doença! Esperança para a Maria e para a cura💜! Abraços e obrigada

#egid #hopeformaria #eosinophilicesophagitisawareness #eosinophilicgastroenteritis
#eosinophilicdisease
#eosinophilicdisorders #foodallergies #allergyfree #top8free #allergies #eosinophil #glutenfree #dairyfree #soyfree #grainfree #eggfree #findacure #big8allergenfriendly #allergictofood
  • Hey guys👋!! This is Maria swimming! A little background history, Maria is 12 years old, and last month,June 2020, she has been diagnosed with a rare disease called EGID, Eosinophilic gastritis- EG.
    Eosinophil are white blood cells we all have but are increased when we have an allergic reaction or an asthma attack. This is what is happening in her stomach which is produced by food hypersensitivites.
    She is now gluten free🍞, eggs free🥚, dairy free🥛, soy free, peanut free🥜, shelfish free🦐, fish free🐟, the nut free🌰.
    Maria also has food intolerances to garlic, tomate🍅, potatoes🥔, eggplant🍆, peppers,  chilli pepper🌶, paprika and curry. (The Solanaceae, or nightshade family)
    We are here sharing Maria' story to receive and give love, light, optimism and hopefully became an advocate for athletic and children struggling with this disease! Hope for Maria💜. Thank you

    Oi pessoal👋! Esta é a Maria nadando! Um pequeno resumo da história dela, a Maria tem 12 anos e no mês passado, em junho de 2020, ela foi diagnosticada com uma doença rara chamada Gastroenterite Eosinofílica.
    Eosinófilos são um tipo de glóbulo branco do sangue que desempenha um papel importante na resposta do organismo a reações alérgicas e asma. Essas células contribuem para a inflamação que ocorre em distúrbios alérgicos.
    E é o que está acontecendo com o estômago e intestino da Maria, por hipersensilbilidade alimentar, ou alergia alimentar.
    Atualmente a Maria tem alergia alimetar a: glúten🍞, ovos🥚, leite🥛, soja, amendoim🥜, frutas secas🌰, peixe🐟 e mariscos🦐.
    A Maria também tem intolerância alimentar à alho, tomate🍅, batata🥔, beringela🍆, pimentão, pimenta🌶, jiló, jurubeba, goji, paprika - Família das Solanáceas.
    Estamos para dividir com vocês a história da Maria para receber e dar amor aos atletas e crianças sofrendo com esta doença! Esperança para a Maria e para a cura💜! Abraços e obrigada

    #egid #hopeformaria #eosinophilicesophagitisawareness #eosinophilicgastroenteritis
    #eosinophilicdisease
    #eosinophilicdisorders #foodallergies #allergyfree #top8free #allergies #eosinophil #glutenfree #dairyfree #soyfree #grainfree #eggfree #findacure #big8allergenfriendly #allergictofood

  •  13  1  12 July, 2020
  • Update:

Three weeks post-op today. Recovery is going well. 👊

Starting a new treatment for my asthma/allergies today. I just received two Dupixent shots. I'll be getting one shot every other week for about six months - stopping allergy shots for now.

Unfortunately, my symptoms are really bad again so I'm getting one last round of Prednisone - five day RX.

Dr said I should feel a difference within hours after the shots today and following the third shot most symptoms if not all should be gone. 
Let's hope!! I'm ready for a permanent solution to my eosinophilic condition.

Happy Monday!

#eosinophilicdisease #eosinophilicdisorders #asthma #allergies #momlife #momof3boys #momofboys #boymom #boymomlife
  • Update:

    Three weeks post-op today. Recovery is going well. 👊

    Starting a new treatment for my asthma/allergies today. I just received two Dupixent shots. I'll be getting one shot every other week for about six months - stopping allergy shots for now.

    Unfortunately, my symptoms are really bad again so I'm getting one last round of Prednisone - five day RX.

    Dr said I should feel a difference within hours after the shots today and following the third shot most symptoms if not all should be gone.
    Let's hope!! I'm ready for a permanent solution to my eosinophilic condition.

    Happy Monday!

    #eosinophilicdisease #eosinophilicdisorders #asthma #allergies #momlife #momof3boys #momofboys #boymom #boymomlife

  •  24  5  8 June, 2020
  • Dallas/Ft Worth Texas Families: Join our zoom webinar with guest Dr Michael Russo, Pediatric Gastroenterologist in Dallas. 
When: 5/8, 2:15pm CST. 
Hear him talk about Eosinophilic Disorders: Diagnosis & Treatment options. #eosinophiliceducation #eosinophilicesophagitis #eosinophilicdisorders 
Link in bio:

https://zoom.us/webinar/register/8015888828458/WN_B5jQbMTuQCGvgbX5bV12Xw
  • Dallas/Ft Worth Texas Families: Join our zoom webinar with guest Dr Michael Russo, Pediatric Gastroenterologist in Dallas.
    When: 5/8, 2:15pm CST.
    Hear him talk about Eosinophilic Disorders: Diagnosis & Treatment options. #eosinophiliceducation #eosinophilicesophagitis #eosinophilicdisorders
    Link in bio:

    https://zoom.us/webinar/register/8015888828458/WN_B5jQbMTuQCGvgbX5bV12Xw

  •  4  0  7 May, 2020
  • Some providers are requiring COVID-19 testing before surgery. This includes Scopes for EGIDs. Check with your healthcare provider. Cincinnati Childrens is now requiring this testing before surgery. The testing is NOT an out of pocket expense for patient. 
https://www.cincinnatichildrens.org/patients/coronavirus-information/questions-answers
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#covid19 #surgery #eosinophilicdisorders #eoe #eosinophilicdisease #CCED
  • Some providers are requiring COVID-19 testing before surgery. This includes Scopes for EGIDs. Check with your healthcare provider. Cincinnati Childrens is now requiring this testing before surgery. The testing is NOT an out of pocket expense for patient.
    https://www.cincinnatichildrens.org/patients/coronavirus-information/questions-answers
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    #covid19 #surgery #eosinophilicdisorders #eoe #eosinophilicdisease #CCED

  •  2  0  22 April, 2020