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Latest #cpips Posts

  • Tough one for Alex today as it was his 6 monthly cpips review so his physio can check over his hips, legs, back, symmetry and range of movement. It meant positioning Alex in all sorts of uncomfortable positions to see what his movement range is and that he isnt developing abnormalities. Thankfully all the results were green which means no major concerns. Kit was there today to offer Cbeebies support 😂

#cpparenting #specialneedslife #cerebralpalsy #cpips #cerebralpalsykids #cerebralpalsywarrior #hiewarrior
  • Tough one for Alex today as it was his 6 monthly cpips review so his physio can check over his hips, legs, back, symmetry and range of movement. It meant positioning Alex in all sorts of uncomfortable positions to see what his movement range is and that he isnt developing abnormalities. Thankfully all the results were green which means no major concerns. Kit was there today to offer Cbeebies support 😂

    #cpparenting #specialneedslife #cerebralpalsy #cpips #cerebralpalsykids #cerebralpalsywarrior #hiewarrior

  •  35  2  22 January, 2020
  • It was Alex's annual CPIPS examination today at the local community hospital. CPIPS stands for Cerebral Palsy Integrated Pathway Scotland and was set up to monitor and prevent progressive hip displacement. Children with cerebral palsy are at risk of developing musculoskeletal problems such as muscle contractures, displacement of the hip and scoliosis. Hip dislocation leads to pain, decreased function and increased difficulties with personal care. With regular, standardised physical and radiological assessments, this allows for early detection of possible hip displacement and timely intervention. 
So today along with Sandra, our fabulous NHS physio and two colleagues Alex got a good stretchy workout...legs straightened, legs bent at 90 degrees, frog legs, spine checked for any curvature. Some of it was difficult for him for example laying on his front causes muscle spasms which means he cant lie completely flat and relaxed on his front most of the time and most physical touching sends his tone sky high. So for one person trying to get him to bend his leg when he is as stiff as a board is trying stuff! I was holding his hand, singing to him, we listened to Cbeebies radio and watched Despicable Me on the tablet...anything to distract him and make him relax. 
So after today he scored all green (which means no issues) apart from hip rotation which is amber (to be monitored for potential issues). This could mean he needs some intervention exercises but ill wait to see what Sandra says. Next we need to have a hip xray to double check everything.

#cerebralpalsywarrior #cpparenting #cpkids #cerebralpalsykids #cerebralpalsy #hiewarrior #cpips
  • It was Alex's annual CPIPS examination today at the local community hospital. CPIPS stands for Cerebral Palsy Integrated Pathway Scotland and was set up to monitor and prevent progressive hip displacement. Children with cerebral palsy are at risk of developing musculoskeletal problems such as muscle contractures, displacement of the hip and scoliosis. Hip dislocation leads to pain, decreased function and increased difficulties with personal care. With regular, standardised physical and radiological assessments, this allows for early detection of possible hip displacement and timely intervention.
    So today along with Sandra, our fabulous NHS physio and two colleagues Alex got a good stretchy workout...legs straightened, legs bent at 90 degrees, frog legs, spine checked for any curvature. Some of it was difficult for him for example laying on his front causes muscle spasms which means he cant lie completely flat and relaxed on his front most of the time and most physical touching sends his tone sky high. So for one person trying to get him to bend his leg when he is as stiff as a board is trying stuff! I was holding his hand, singing to him, we listened to Cbeebies radio and watched Despicable Me on the tablet...anything to distract him and make him relax.
    So after today he scored all green (which means no issues) apart from hip rotation which is amber (to be monitored for potential issues). This could mean he needs some intervention exercises but ill wait to see what Sandra says. Next we need to have a hip xray to double check everything.

    #cerebralpalsywarrior #cpparenting #cpkids #cerebralpalsykids #cerebralpalsy #hiewarrior #cpips

  •  36  0  28 August, 2019
  • Oh to be back here watching my gorgeous boys have a little quiet moment together 😍 
Instead we have just got home from today’s appointment - our first CPIPSE session. CPIPSE is a programme that measures the range of movement in CP kids. Measurements are taken regularly (how often depends on the severity of CP) to try and stay ahead of any developing problems.

It was a bit of a toughy if I’m honest. Frank was really upset which as you know is really unlike him. He is just so aware of everything now, he picks up on the environment (hospital looking room with a bed in it) and just knows he is going to be expected to do something difficult. The ladies taking the session were extremely patient though and we persisted and before long he was back to his smiley self and they managed to get everything they needed.

The results showed a couple of red flags which we were expecting. We’ll now be referred to Orthopaedics who will monitor Frank’s measurements over the next few months and years and intervene if necessary.

Back home for some cuddles and cartoons and a bit of a rest as we have another big appointment at the same centre again tomorrow! #cpwarrior #bemorefrank #cerebralpalsy #spasticquadcp #spasticquadriplegia #dystonia #lifeaftermeningitis #aftermeningitis #groupbstrep #gbsmeningitis #cpips
  • Oh to be back here watching my gorgeous boys have a little quiet moment together 😍
    Instead we have just got home from today’s appointment - our first CPIPSE session. CPIPSE is a programme that measures the range of movement in CP kids. Measurements are taken regularly (how often depends on the severity of CP) to try and stay ahead of any developing problems.

    It was a bit of a toughy if I’m honest. Frank was really upset which as you know is really unlike him. He is just so aware of everything now, he picks up on the environment (hospital looking room with a bed in it) and just knows he is going to be expected to do something difficult. The ladies taking the session were extremely patient though and we persisted and before long he was back to his smiley self and they managed to get everything they needed.

    The results showed a couple of red flags which we were expecting. We’ll now be referred to Orthopaedics who will monitor Frank’s measurements over the next few months and years and intervene if necessary.

    Back home for some cuddles and cartoons and a bit of a rest as we have another big appointment at the same centre again tomorrow! #cpwarrior #bemorefrank #cerebralpalsy #spasticquadcp #spasticquadriplegia #dystonia #lifeaftermeningitis #aftermeningitis #groupbstrep #gbsmeningitis #cpips

  •  812  33  7 May, 2019
  • Today Millie was a little superstar, getting through 90minutes of assessments. She had her CPIPS, GMFCS and assessment from our physio for the SDR Team. (Ahead of Millie’s upcoming consultation) Everything is looking pretty much the same as it has done for the last 6 months... however the physio has identified a curvature in Millie’s lower spine. Hopefully we’ve caught this early and some better posture will help, but we need to keep an eye out in case it is anything more. #gmfcs #cpips #cplife #spasticdiplegia #cerebralpalsy #sdr #nhscommunityservices
  • Today Millie was a little superstar, getting through 90minutes of assessments. She had her CPIPS, GMFCS and assessment from our physio for the SDR Team. (Ahead of Millie’s upcoming consultation) Everything is looking pretty much the same as it has done for the last 6 months... however the physio has identified a curvature in Millie’s lower spine. Hopefully we’ve caught this early and some better posture will help, but we need to keep an eye out in case it is anything more. #gmfcs #cpips #cplife #spasticdiplegia #cerebralpalsy #sdr #nhscommunityservices

  •  11  1  18 March, 2019
  • Chilled out at his CPIPS assessment today 😎 Wilson truly is amazing, he just accepts everything that he has to do without question. 💚
A CPIPS assessment helps determine if Wilson’s hips are where they should be basically! Children with CP are at risk for hip displacement and hip dislocation, mostly due to the spasticity in the body.
You can understand our determination to raise the money to remove this from Wilson’s body!!
💚
Luckily today they said everything seemed ok for now but they definitely need to keep an eye on things! 💚 ⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀ #WillingWilson #cpips #assessment #cerebralpalsy #cp #disability #hips #chilledout #fundraising #sdr #therapy
  • Chilled out at his CPIPS assessment today 😎 Wilson truly is amazing, he just accepts everything that he has to do without question. 💚
    A CPIPS assessment helps determine if Wilson’s hips are where they should be basically! Children with CP are at risk for hip displacement and hip dislocation, mostly due to the spasticity in the body.
    You can understand our determination to raise the money to remove this from Wilson’s body!!
    💚
    Luckily today they said everything seemed ok for now but they definitely need to keep an eye on things! 💚 ⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀ #WillingWilson #cpips #assessment #cerebralpalsy #cp #disability #hips #chilledout #fundraising #sdr #therapy

  •  84  8  29 November, 2018
  • Sometimes we need to get out of our comfort zone and go after new challenges in life so we can improve and push ourselves. When they show up, get them!! Today I have mine...thank you life, i won't disappoint...🙏🙌💪👊
#cpips
#figueiradafoz
  • Sometimes we need to get out of our comfort zone and go after new challenges in life so we can improve and push ourselves. When they show up, get them!! Today I have mine...thank you life, i won't disappoint...🙏🙌💪👊
    #cpips
    #figueiradafoz

  •  19  5  3 April, 2018

Top #cpips Posts

  • Tough one for Alex today as it was his 6 monthly cpips review so his physio can check over his hips, legs, back, symmetry and range of movement. It meant positioning Alex in all sorts of uncomfortable positions to see what his movement range is and that he isnt developing abnormalities. Thankfully all the results were green which means no major concerns. Kit was there today to offer Cbeebies support 😂

#cpparenting #specialneedslife #cerebralpalsy #cpips #cerebralpalsykids #cerebralpalsywarrior #hiewarrior
  • Tough one for Alex today as it was his 6 monthly cpips review so his physio can check over his hips, legs, back, symmetry and range of movement. It meant positioning Alex in all sorts of uncomfortable positions to see what his movement range is and that he isnt developing abnormalities. Thankfully all the results were green which means no major concerns. Kit was there today to offer Cbeebies support 😂

    #cpparenting #specialneedslife #cerebralpalsy #cpips #cerebralpalsykids #cerebralpalsywarrior #hiewarrior

  •  35  2  22 January, 2020
  • Today Millie was a little superstar, getting through 90minutes of assessments. She had her CPIPS, GMFCS and assessment from our physio for the SDR Team. (Ahead of Millie’s upcoming consultation) Everything is looking pretty much the same as it has done for the last 6 months... however the physio has identified a curvature in Millie’s lower spine. Hopefully we’ve caught this early and some better posture will help, but we need to keep an eye out in case it is anything more. #gmfcs #cpips #cplife #spasticdiplegia #cerebralpalsy #sdr #nhscommunityservices
  • Today Millie was a little superstar, getting through 90minutes of assessments. She had her CPIPS, GMFCS and assessment from our physio for the SDR Team. (Ahead of Millie’s upcoming consultation) Everything is looking pretty much the same as it has done for the last 6 months... however the physio has identified a curvature in Millie’s lower spine. Hopefully we’ve caught this early and some better posture will help, but we need to keep an eye out in case it is anything more. #gmfcs #cpips #cplife #spasticdiplegia #cerebralpalsy #sdr #nhscommunityservices

  •  11  1  18 March, 2019
  • Chilled out at his CPIPS assessment today 😎 Wilson truly is amazing, he just accepts everything that he has to do without question. 💚
A CPIPS assessment helps determine if Wilson’s hips are where they should be basically! Children with CP are at risk for hip displacement and hip dislocation, mostly due to the spasticity in the body.
You can understand our determination to raise the money to remove this from Wilson’s body!!
💚
Luckily today they said everything seemed ok for now but they definitely need to keep an eye on things! 💚 ⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀ #WillingWilson #cpips #assessment #cerebralpalsy #cp #disability #hips #chilledout #fundraising #sdr #therapy
  • Chilled out at his CPIPS assessment today 😎 Wilson truly is amazing, he just accepts everything that he has to do without question. 💚
    A CPIPS assessment helps determine if Wilson’s hips are where they should be basically! Children with CP are at risk for hip displacement and hip dislocation, mostly due to the spasticity in the body.
    You can understand our determination to raise the money to remove this from Wilson’s body!!
    💚
    Luckily today they said everything seemed ok for now but they definitely need to keep an eye on things! 💚 ⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀ #WillingWilson #cpips #assessment #cerebralpalsy #cp #disability #hips #chilledout #fundraising #sdr #therapy

  •  84  8  29 November, 2018
  • Sometimes we need to get out of our comfort zone and go after new challenges in life so we can improve and push ourselves. When they show up, get them!! Today I have mine...thank you life, i won't disappoint...🙏🙌💪👊
#cpips
#figueiradafoz
  • Sometimes we need to get out of our comfort zone and go after new challenges in life so we can improve and push ourselves. When they show up, get them!! Today I have mine...thank you life, i won't disappoint...🙏🙌💪👊
    #cpips
    #figueiradafoz

  •  19  5  3 April, 2018
  • It was Alex's annual CPIPS examination today at the local community hospital. CPIPS stands for Cerebral Palsy Integrated Pathway Scotland and was set up to monitor and prevent progressive hip displacement. Children with cerebral palsy are at risk of developing musculoskeletal problems such as muscle contractures, displacement of the hip and scoliosis. Hip dislocation leads to pain, decreased function and increased difficulties with personal care. With regular, standardised physical and radiological assessments, this allows for early detection of possible hip displacement and timely intervention. 
So today along with Sandra, our fabulous NHS physio and two colleagues Alex got a good stretchy workout...legs straightened, legs bent at 90 degrees, frog legs, spine checked for any curvature. Some of it was difficult for him for example laying on his front causes muscle spasms which means he cant lie completely flat and relaxed on his front most of the time and most physical touching sends his tone sky high. So for one person trying to get him to bend his leg when he is as stiff as a board is trying stuff! I was holding his hand, singing to him, we listened to Cbeebies radio and watched Despicable Me on the tablet...anything to distract him and make him relax. 
So after today he scored all green (which means no issues) apart from hip rotation which is amber (to be monitored for potential issues). This could mean he needs some intervention exercises but ill wait to see what Sandra says. Next we need to have a hip xray to double check everything.

#cerebralpalsywarrior #cpparenting #cpkids #cerebralpalsykids #cerebralpalsy #hiewarrior #cpips
  • It was Alex's annual CPIPS examination today at the local community hospital. CPIPS stands for Cerebral Palsy Integrated Pathway Scotland and was set up to monitor and prevent progressive hip displacement. Children with cerebral palsy are at risk of developing musculoskeletal problems such as muscle contractures, displacement of the hip and scoliosis. Hip dislocation leads to pain, decreased function and increased difficulties with personal care. With regular, standardised physical and radiological assessments, this allows for early detection of possible hip displacement and timely intervention.
    So today along with Sandra, our fabulous NHS physio and two colleagues Alex got a good stretchy workout...legs straightened, legs bent at 90 degrees, frog legs, spine checked for any curvature. Some of it was difficult for him for example laying on his front causes muscle spasms which means he cant lie completely flat and relaxed on his front most of the time and most physical touching sends his tone sky high. So for one person trying to get him to bend his leg when he is as stiff as a board is trying stuff! I was holding his hand, singing to him, we listened to Cbeebies radio and watched Despicable Me on the tablet...anything to distract him and make him relax.
    So after today he scored all green (which means no issues) apart from hip rotation which is amber (to be monitored for potential issues). This could mean he needs some intervention exercises but ill wait to see what Sandra says. Next we need to have a hip xray to double check everything.

    #cerebralpalsywarrior #cpparenting #cpkids #cerebralpalsykids #cerebralpalsy #hiewarrior #cpips

  •  36  0  28 August, 2019